Comments for Doubleboys' Weblog http://doubleboys.wordpress.com Journal of two boys' insulin pumps Thu, 15 May 2008 11:25:18 +0000 http://wordpress.org/?v=MU Comment on Back to school - for me, too! by doubleboys http://doubleboys.wordpress.com/2008/03/25/back-to-school-for-me-too/#comment-34 doubleboys Sun, 30 Mar 2008 09:52:34 +0000 http://doubleboys.wordpress.com/?p=21#comment-34 Will get in touch, Angie if any fun and games continue at lunch time etc. I really love the maths of your solutions. I'll pass them on to my team too! Thanks. Will get in touch, Angie if any fun and games continue at lunch time etc. I really love the maths of your solutions. I’ll pass them on to my team too! Thanks.

]]> Comment on Back to school - for me, too! by Angie J http://doubleboys.wordpress.com/2008/03/25/back-to-school-for-me-too/#comment-32 Angie J Fri, 28 Mar 2008 18:35:38 +0000 http://doubleboys.wordpress.com/?p=21#comment-32 This quick reply has turned into a complex, maths crunching reply - like you don't have enough to calculate! sorry! Interesting to read about Joes' morning pattern - it really does sound *exactly* like Alice in the early days of pumping ... Your team will no doubt advise you well, but our (eventual) solution was to increase the breakfast bolus (using the ratio) which has stopped the spike going higher than 12mmol ish, but taking her basal down to zero from 9am until 12midday, only then increasing to 0.05ph until 1pm - Many many professionals were talked to about this (esp the extended zero basal), but more than anything this is to reassure you that you sometimes have to arrive at a rather unusual solution to fit the child. We *also* had the same problem where a hypo at the start of lunch would delay her by 15 mins, not allowing her to eat with her peers. Trial and error brought us to use a combination bolus every school lunchtime, 15% now (corrected for current BG) and 85% over 30 mins. [FYI, 15% of her average lunchtime dose is equal to the amount that the dose would be reduced by if she was 4mmol - thats how we arrived at the 15% figure - crikey - does that make sense?!] This gave a small amount of flexibility to the lunchtime and has kept her safe within school which can be varying in their timekeeping at lunchtime. If she is actually hypo at (school) lunchtime, she has 3 glucose (she normally only needs 2), the insulin as above (which, because corrected would give no immediate %, only the extended portion) and lunch straight away - no waiting for 15 mins - she then rechecks her BG 40 mins after the bolus to check she is in range - clear as mud? - hey it works for us!! Contact me if you have any desire to discuss this further (!!?) - we had huge fun and games at lunchtime (seizures, lows, lows during meal etc etc) and the system we now use has kept her fine and even more importantly, happy. This quick reply has turned into a complex, maths crunching reply - like you don’t have enough to calculate! sorry!

Interesting to read about Joes’ morning pattern - it really does sound *exactly* like Alice in the early days of pumping … Your team will no doubt advise you well, but our (eventual) solution was to increase the breakfast bolus (using the ratio) which has stopped the spike going higher than 12mmol ish, but taking her basal down to zero from 9am until 12midday, only then increasing to 0.05ph until 1pm - Many many professionals were talked to about this (esp the extended zero basal), but more than anything this is to reassure you that you sometimes have to arrive at a rather unusual solution to fit the child.

We *also* had the same problem where a hypo at the start of lunch would delay her by 15 mins, not allowing her to eat with her peers. Trial and error brought us to use a combination bolus every school lunchtime, 15% now (corrected for current BG) and 85% over 30 mins. [FYI, 15% of her average lunchtime dose is equal to the amount that the dose would be reduced by if she was 4mmol - thats how we arrived at the 15% figure - crikey - does that make sense?!] This gave a small amount of flexibility to the lunchtime and has kept her safe within school which can be varying in their timekeeping at lunchtime.

If she is actually hypo at (school) lunchtime, she has 3 glucose (she normally only needs 2), the insulin as above (which, because corrected would give no immediate %, only the extended portion) and lunch straight away - no waiting for 15 mins - she then rechecks her BG 40 mins after the bolus to check she is in range - clear as mud? - hey it works for us!!

Contact me if you have any desire to discuss this further (!!?) - we had huge fun and games at lunchtime (seizures, lows, lows during meal etc etc) and the system we now use has kept her fine and even more importantly, happy.

]]> Comment on Brilliant day, bad day. by Stacey Derbinshire http://doubleboys.wordpress.com/2008/03/20/brilliant-day-bad-day/#comment-18 Stacey Derbinshire Thu, 20 Mar 2008 20:58:43 +0000 http://doubleboys.wordpress.com/?p=17#comment-18 I found your blog on google and read a few of your other posts. I just added you to my Google News Reader. Keep up the good work. Look forward to reading more from you in the future. Stacey Derbinshire I found your blog on google and read a few of your other posts. I just added you to my Google News Reader. Keep up the good work. Look forward to reading more from you in the future.

Stacey Derbinshire

]]> Comment on Cooking and dreaming don’t go together. by Lisa http://doubleboys.wordpress.com/2008/03/19/cooking-and-dreaming-dont-go-together/#comment-17 Lisa Thu, 20 Mar 2008 12:12:47 +0000 http://doubleboys.wordpress.com/?p=15#comment-17 This is invaluable reading. Matty is hopefully getting a pump in a few months so this is great! Thanks This is invaluable reading. Matty is hopefully getting a pump in a few months so this is great! Thanks

]]> Comment on Cooking and dreaming don’t go together. by Lorraine http://doubleboys.wordpress.com/2008/03/19/cooking-and-dreaming-dont-go-together/#comment-16 Lorraine Thu, 20 Mar 2008 01:31:32 +0000 http://doubleboys.wordpress.com/?p=15#comment-16 What great reading - how do you do it on no sleep? I'm so pleased for all of you that you are there at last. What great reading - how do you do it on no sleep? I’m so pleased for all of you that you are there at last.

]]> Comment on Cooking and dreaming don’t go together. by caroline http://doubleboys.wordpress.com/2008/03/19/cooking-and-dreaming-dont-go-together/#comment-15 caroline Wed, 19 Mar 2008 21:35:01 +0000 http://doubleboys.wordpress.com/?p=15#comment-15 Sounds like a good day, feel better soon Joe and Tom's extra energy, well that just makes me smile litttle man. Sounds like a good day, feel better soon Joe and Tom’s extra energy, well that just makes me smile litttle man.

]]> Comment on A long but very happy day! by caroline http://doubleboys.wordpress.com/2008/03/18/a-long-but-very-happy-day/#comment-13 caroline Wed, 19 Mar 2008 12:18:51 +0000 http://doubleboys.wordpress.com/?p=12#comment-13 Hang in there Jacqui, I am so thrilled to be able to follow along with you all in this truly amazing journey. Hang in there Jacqui, I am so thrilled to be able to follow along with you all in this truly amazing journey.

]]> Comment on Live insulin tomorrow! by Jackie http://doubleboys.wordpress.com/2008/03/17/live-insulin-tomorrow/#comment-7 Jackie Tue, 18 Mar 2008 09:43:50 +0000 http://doubleboys.wordpress.com/?p=11#comment-7 Good luck for today, may everything fall into place quickly. May you manage to restrain yourselves from throwing the pump out of the window in the next couple of weeks. If you find yourself questioning whether its all worth while; it will be. Just give it time. I hope the boys have a very smooth insulin start. Good luck for today, may everything fall into place quickly. May you manage to restrain yourselves from throwing the pump out of the window in the next couple of weeks. If you find yourself questioning whether its all worth while; it will be. Just give it time. I hope the boys have a very smooth insulin start.

]]> Comment on Live insulin tomorrow! by Jackie http://doubleboys.wordpress.com/2008/03/17/live-insulin-tomorrow/#comment-6 Jackie Tue, 18 Mar 2008 09:40:09 +0000 http://doubleboys.wordpress.com/?p=11#comment-6 Oh the irony, thinking that you can get away from diabetes!! Oh the irony, thinking that you can get away from diabetes!!

]]> Comment on WE ARE PUMPING! by Angie J http://doubleboys.wordpress.com/2008/03/12/we-are-pumping/#comment-5 Angie J Wed, 12 Mar 2008 18:05:13 +0000 http://doubleboys.wordpress.com/?p=7#comment-5 I have now lost count of how many times my eyes have welled up whilst reading this account of your day. I am absolutely *thrilled* that your boys finally have their pumps, and I hope that over the next few days and weeks you can all start to gain confidence with them. This is life changing stuff indeed..... Alice would never ever give her pump up, and she has only had hers for 12 weeks now. Angie x I have now lost count of how many times my eyes have welled up whilst reading this account of your day. I am absolutely *thrilled* that your boys finally have their pumps, and I hope that over the next few days and weeks you can all start to gain confidence with them.

This is life changing stuff indeed….. Alice would never ever give her pump up, and she has only had hers for 12 weeks now.

Angie x

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