Brilliant day, bad day.

Having started the day needing to do a set change for Joe, as his reservoir was full of bubbles and he had had lots of corrections over night, Joe carried on as he had begun. I think my biggest mistake was giving him lentil soup again for lunch… the same thing happened as over night; a huge spike up and lots of correcting to get him down again. And the moral of the story; don’t have lentil soup for lunch after it has made you high after dinner. Oh well. At least I know we need to experiment with this low GI meal so that it doesn’t cause such havoc again. Its Joe’s favourite food and he’ll be very cross if I get funny about him eating it.

I am thinking a square wave bolus - though I would feel like a right know it all to use one on my second day pumping insulin! So, I am popping some of the soup into the freezer and we will use it in a ‘lentil and tomato soup’ experiment in a few weeks time, when I try out different bolus patterns. Fancy a bowl of lentil soup being a difficult food. How ironic that something so healthy can be so problematic.

Tom however, who had scrambled egg on toast for his lunch, has had an amazing day. If we have days where Tom has levels under 9mmol we can usually be pretty sure he will have had hypos at least two or three times in the same day. Well, I hate to tempt fate but he has had a shocking day. On waking 5.6mmol, at breakfast 4.4mmol, mid morning 7.7mmol, before lunch 6.6mmol, after lunch 7.8mmol, 5.30pm 10.1 mmol, pre dinner 7.7mmol!

We have never ever seen stability like this for Tom. It means his Total Daily Insulin has dropped to 12.5 units from around 15 units on MDI, but his control has been so much better. This must be his first normal levels day since he was diagnosed. I can’t tell you how upsetting that is. To think he has had 1 day out of the last 27,000 odd where he would have felt like any other kid. There has been no rushing head long to the loo, no whining and grumpiness and no shaking with hunger and frustration. He sat happily at the kitchen table and did some of the school work he has brought home, and he just kept sitting and writing for ages. He has always been an imaginative little chap, but his work used to explode from him in one blaze of creativity. Today he did a slow burning build up and enjoyed telling me he had finished. Then he did some maths without complaint!

I hope Joe has a good day tomorrow. I must go and get his monkey set up with his pump pack. Joe is such a sweet tempered little chap that you would never know when he was high if you didn’t know him really well. He gets closer to tears over smaller things and finds it very frustrating that he cannot concentrate as well on his work. I could tell he wasn’t himself today at the table. He had to cross out several answers in his science book, and then kept writing out the same wrong answer again. He doesn’t get angry or openly upset. But you can see he is not happy about it all.

We are going to the cinema tomorrow and they are going to be allowed to choose something to eat from the snack section. Usually I take bags of nuts or something they don’t have to bolus for, but not on this occasion. It will be great to see a film that Tom doesn’t have to leave part way through to go to the loo. Olly will appreciate that as well, I am sure. Since the boys have been big enough to know they don’t want to be seen in the girls toilets, he has been the one to have to take them to the loo. Well there have to be some positives for a girl, don’t there?